Wow. It's been a while since I have posted. Four months to be exact. I didn't realize how long it's been, perhaps, because I was so tired of
Achalasia and talking about it.
What's new with the my struggle with the disease? Ill tell you. My new thing is sucking on trays of ice all day to keep myself from eating only because even though
the food goes down eventually, it hurts like heck while it's traveling through my esophagus, attempting to get through that teeny tiny opening at the sphincter. My esophagus is too weak. Too weak for surgery and so weak that my doctors are afraid to perform my regular
endoscopy's.
My current
gastro doctor says she won't go in. It was so weak, "It flaps" her words, not mine. She
suggested I go to Dr. G in Manhattan and Dr. G
has volunteered to do the
endoscopy's but after the
manometry fiasco in his office and my current
Gastro doctors comments, I'm afraid of perforation which is something that can definitely happen while fiddling with my esophagus. This has left me hanging, treatment-wise. What to do?
The
endoscopy's are very important. I have had them done twice a year for many years This is needed in order to identify abnormal cell growth. I am very vulnerable to esophageal cancer. The
endoscopy's can catch it at an early stage and I suppose can be treated quickly and perhaps save my life. I have not fully
researched the average prognosis for people with esophageal cancer but I should. My digestive system is not the best either so I have been given medication for that as well. Now my pill count is up to seven a day.
The
nausea is occurring more often so I have to take
meds for that as well.
So there
you go
there's my update. I'm sorry I
haven't been on as much but I'm sure
you can understand why. I do feel I should because I am discovering others with the
disorder/disease and it is good to know that I am not alone.
LONG-TERM RISK OF ESOPHAGEAL CANCER — People with achalasia have an increased risk of esophageal cancer, particularly if obstruction is not adequately relieved. As a result, doctors recommend regular endoscopic screening for early detection of this cancer.
http://www.uptodate.com/patients/content/topic.do?topicKey=~PYBP8zFhVa5F0B