Monday, November 9, 2009

three days of agonizing pain in my throat, a feeling like something is stuck in it. o induce vomitting to get it out but nothing came out. i spit and I'm constantly clearing my throat. when I swallow it hurts like heck more than ever and it's a new pain. i will see my doc tomorrow

Wednesday, August 12, 2009

Neurological?

I have been losing chunks of memories. I have been experiencing it much too much lately and so I went to see a psychiatrist who told me that achalasia or my anemia could be part of it. He told me to see my primary care physician and ask him to recommend a neurologist. I am going to do it. I have an appointment to go see my Doc this afternoon. In the meantime I did some research and here is what I found. Read the entire article. Warning: You may need a medical dictionary to decipher some of the article. The following quote is just a very small bit. But it is important to read the whole thing and maybe one of you readers can tell me what you got out of it. Maybe I misunderstood it."The corollary to this is that loss of argyrophilcells may have the same clinical effect as totalneuronal fall-out."


http://www.pubmedcentral.nih.gov/picrender.fcgi?artid=1411548&blobtype=pdf

Friday, July 24, 2009

Blog Recommendation


If you want some great reading on the daily ....don't want to use the word "struggles" so I'll say...comings and going of a mom of an Achalasian. Read this blog. I have never heard anyone who doesn't have Achalasia describe it and "feel" it as close as this mom. I enjoy reading this blog and it's a different perspective, the view from the parent of someone with the disorder. Enjoy


Wednesday, July 22, 2009

I'm Still Here

I am promising to be more dedicated to this blog. For some odd reason I found some old comments that I never knew existed and found that my blog has helped me discover others just like me and as you and me know that is a rare thing. So tune in. I'll be around

Saturday, January 24, 2009

Respitory Infection
Big Meltdown
Allergic reaction to antibiotics
Filling out 24 pages of medical forms


How was your Saturday?

Thursday, January 22, 2009



I went on my search engine and typed "How long can a person go without food" and found that it could be pretty long. especially a person like me. I also found out, actually it verified the fact that I cannot go without water for more than a week.
Everything hurts when I try to eat. EVERYTHING. I tried everything so I decided not to eat anything. I am in pain all the time and I am sick of it so today I had lots of ice, one cup of coffee and a teaspoon of peanut butter. I regretted the coffee and peanut butter because even though it was easier on the esophagus, it hurt like heck when it reached my stomach. So there is no winning.
I woke up at one-thirty this afternoon because I was in such pain last night and stayed in bed all day, except to make my coffee and eat the dreadful peanut butter.

Thursday, December 18, 2008


Wow. It's been a while since I have posted. Four months to be exact. I didn't realize how long it's been, perhaps, because I was so tired of Achalasia and talking about it.
What's new with the my struggle with the disease? Ill tell you. My new thing is sucking on trays of ice all day to keep myself from eating only because even though the food goes down eventually, it hurts like heck while it's traveling through my esophagus, attempting to get through that teeny tiny opening at the sphincter. My esophagus is too weak. Too weak for surgery and so weak that my doctors are afraid to perform my regular endoscopy's.
My current gastro doctor says she won't go in. It was so weak, "It flaps" her words, not mine. She suggested I go to Dr. G in Manhattan and Dr. G has volunteered to do the endoscopy's but after the manometry fiasco in his office and my current Gastro doctors comments, I'm afraid of perforation which is something that can definitely happen while fiddling with my esophagus. This has left me hanging, treatment-wise. What to do?
The endoscopy's are very important. I have had them done twice a year for many years This is needed in order to identify abnormal cell growth. I am very vulnerable to esophageal cancer. The endoscopy's can catch it at an early stage and I suppose can be treated quickly and perhaps save my life. I have not fully researched the average prognosis for people with esophageal cancer but I should. My digestive system is not the best either so I have been given medication for that as well. Now my pill count is up to seven a day.
The nausea is occurring more often so I have to take meds for that as well.
So there you go there's my update. I'm sorry I haven't been on as much but I'm sure you can understand why. I do feel I should because I am discovering others with the disorder/disease and it is good to know that I am not alone.

LONG-TERM RISK OF ESOPHAGEAL CANCER — People with achalasia have an increased risk of esophageal cancer, particularly if obstruction is not adequately relieved. As a result, doctors recommend regular endoscopic screening for early detection of this cancer.

http://www.uptodate.com/patients/content/topic.do?topicKey=~PYBP8zFhVa5F0B